National MS Disease Registry Act
The source supplies the latest action, but no lifecycle stage.
Latest action (22 Apr 2008): Referred to the Subcommittee on Health.
What this bill does
H.R. 5874, the National MS Disease Registry Act, proposes to establish a national system for collecting and storing data on multiple sclerosis (MS). This system would include a population-based registry of MS cases across the United States. The Secretary of Health and Human Services would oversee this initiative, acting through the Agency for Toxic Substances and Disease Registry.
The bill would affect individuals diagnosed with MS by gathering information about their condition. It also involves various government agencies, including the National Institutes of Health (NIH), the Department of Veterans Affairs (VA), and the Department of Defense (DOD), which would receive access to the collected epidemiological and other relevant data. Additionally, the bill allows for grants to public or private nonprofit entities to assist in data collection and analysis.
This bill was introduced in the House of Representatives in April 2008 during the 110th Congress and was referred to the Committee on Energy and Commerce. As of the provided information, the latest action listed is its introduction.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
National MS Disease Registry Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Agency for Toxic Substances and Disease Registry, to: (1) develop a system to collect data on multiple sclerosis (MS); and (2) establish a national surveillance system for the collection and storage of such data, including a population-based registry of U.S. cases of MS.
Requires the Secretary to establish the Advisory Committee on the MS National Surveillance System.
Allows the Secretary to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on MS.
Requires the Secretary to: (1) identify, build upon, expand, and coordinate existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to MS data.
Requires the Secretary to ensure that epidemiological and other types of information collected are made available to agencies such as the National Institutes of Health (NIH), the Department of Veterans Affairs (VA), and the Department of Defense (DOD).
Timeline
22 Apr 2008
Referred to the Subcommittee on Health.
Common questions
- What does H.R. 5874 do?
- H.R. 5874, the National MS Disease Registry Act, proposes to establish a national system for collecting and storing data on multiple sclerosis (MS). This system would include a population-based registry of MS cases across the United States. The Secretary of Health and Human Services would oversee this initiative, acting through the Agency for Toxic Substances and Disease Registry. The bill would affect individuals diagnosed with MS by gathering information about their condition. It also involves various government agencies, including the National Institutes of Health (NIH), the Department of Veterans Affairs (VA), and the Department of Defense (DOD), which would receive access to the collected epidemiological and other relevant data. Additionally, the bill allows for grants to public or private nonprofit entities to assist in data collection and analysis. This bill was introduced in the House of Representatives in April 2008 during the 110th Congress and was referred to the Committee on Energy and Commerce. As of the provided information, the latest action listed is its introduction.
- Has H.R. 5874 become law?
- The source does not supply a confirmed lifecycle stage for H.R. 5874. Check the latest action and official source below.
- Who sponsored H.R. 5874?
- H.R. 5874 was sponsored by Rep. Burgess, Michael C. [R-TX-26] (R-TX), with 43 cosponsors.
- What's the latest action on H.R. 5874?
- Referred to the Subcommittee on Health. (22 Apr 2008).
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