Advancing Research for Neurological Diseases Act of 2015
Latest action (13 Jan 2015): Introduced
What this bill does
H.R. 292, the Advancing Research for Neurological Diseases Act of 2015, would amend the Public Health Service Act to direct the Secretary of Health and Human Services, acting through the CDC, to create a National Neurological Diseases Surveillance System. This system would track the incidence, prevalence, and other data related to neurological diseases, including multiple sclerosis and Parkinson's disease, such as demographic information, risk factors, and diagnosis and progression markers. The bill authorizes grants and contracts to support this work and requires consultation with epidemiologists, patient advocacy groups, clinicians, and researchers. It also sets privacy protections at least as strict as HIPAA standards, requires coordination with other federal health agencies, allows public and researcher access to the data, and calls for a report to Congress within four years. The bill authorizes $5 million annually for fiscal years 2015 through 2019.
The bill would primarily affect public health agencies, researchers, and patients or advocacy organizations focused on neurological diseases by improving data available for studying these conditions and informing future research or treatment approaches.
Introduced on January 13, 2015, by Rep. Michael Burgess with several cosponsors, the bill was referred to the House Committee on Energy and Commerce. According to the Congressional Research Service, this bill itself was not enacted, but its provisions were incorporated into other legislation that was later signed into law.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
Advancing Research for Neurological Diseases Act of 2015
Amends the Public Health Service Act to require the Centers for Disease Control and Prevention to: (1) enhance and expand infrastructure and activities to track the epidemiology of neurological diseases, including multiple sclerosis and Parkinson's disease; and (2) incorporate information obtained through those activities into a National Neurological Diseases Surveillance System. Requires the Department of Health and Human Services (HHS) to ensure that the System facilitates further research on neurological diseases.
Requires HHS to provide for the collection and storage of information on neurological diseases, including the incidence, prevalence, and other information, to the extent practicable.
Requires HHS to: (1) make information and analysis in the System available to federal agencies and to the public, including researchers; and (2) ensure that privacy and security protections applicable to the System are at least as stringent as the protections under the Health Insurance Portability and Accountability Act.
Common questions
- What does H.R. 292 do?
- H.R. 292, the Advancing Research for Neurological Diseases Act of 2015, would amend the Public Health Service Act to direct the Secretary of Health and Human Services, acting through the CDC, to create a National Neurological Diseases Surveillance System. This system would track the incidence, prevalence, and other data related to neurological diseases, including multiple sclerosis and Parkinson's disease, such as demographic information, risk factors, and diagnosis and progression markers. The bill authorizes grants and contracts to support this work and requires consultation with epidemiologists, patient advocacy groups, clinicians, and researchers. It also sets privacy protections at least as strict as HIPAA standards, requires coordination with other federal health agencies, allows public and researcher access to the data, and calls for a report to Congress within four years. The bill authorizes $5 million annually for fiscal years 2015 through 2019. The bill would primarily affect public health agencies, researchers, and patients or advocacy organizations focused on neurological diseases by improving data available for studying these conditions and informing future research or treatment approaches. Introduced on January 13, 2015, by Rep. Michael Burgess with several cosponsors, the bill was referred to the House Committee on Energy and Commerce. According to the Congressional Research Service, this bill itself was not enacted, but its provisions were incorporated into other legislation that was later signed into law.
- Has H.R. 292 become law?
- Not yet. As of 13 Jan 2015, H.R. 292 is introduced.
- Who sponsored H.R. 292?
- H.R. 292 was sponsored by Rep. Michael Burgess [R-TX26, 2003-2024] (Republican-TX), with 129 cosponsors.
- What's the latest action on H.R. 292?
- Introduced (13 Jan 2015).
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