DeOndra Dixon INCLUDE Project Act of 2026
Latest action (6 Aug 2026): Passed Senate with an amendment by Voice Vote.
What this bill does
S. 1838, the DeOndra Dixon INCLUDE Project Act of 2026, would amend the Public Health Service Act to formally authorize the National Institutes of Health to run a dedicated research program on Down syndrome, called the INCLUDE Project. The program would fund high-risk, high-reward research into trisomy 21, support long-term studies of people with Down syndrome across their lifespan, expand clinical trials that include or are designed for this population, and investigate conditions that frequently co-occur with Down syndrome, such as Alzheimer's disease and autoimmune disorders. The bill also directs NIH to coordinate related work across its institutes and centers, avoid duplicating existing research, and consult with patient advocates and other stakeholders.
The bill primarily affects NIH's research operations and, indirectly, individuals with Down syndrome and their families, who are the intended beneficiaries of the expanded research and clinical trial access. It would also create a new reporting obligation: NIH's Director would have to submit a report every two years to relevant House and Senate committees detailing the research conducted under the program and any resulting real-world evidence.
The Senate passed the bill by voice vote on August 6, 2026, with an amendment. It now goes to the House of Representatives, which must pass it (in the same or a further-amended form) before it could be sent to the President.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
This bill passed in the Senate on August 6, 2026 and goes to the House next for consideration.
Timeline
6 Aug 2026
Passed Senate with an amendment by Voice Vote.
Common questions
- What does S. 1838 do?
- S. 1838, the DeOndra Dixon INCLUDE Project Act of 2026, would amend the Public Health Service Act to formally authorize the National Institutes of Health to run a dedicated research program on Down syndrome, called the INCLUDE Project. The program would fund high-risk, high-reward research into trisomy 21, support long-term studies of people with Down syndrome across their lifespan, expand clinical trials that include or are designed for this population, and investigate conditions that frequently co-occur with Down syndrome, such as Alzheimer's disease and autoimmune disorders. The bill also directs NIH to coordinate related work across its institutes and centers, avoid duplicating existing research, and consult with patient advocates and other stakeholders. The bill primarily affects NIH's research operations and, indirectly, individuals with Down syndrome and their families, who are the intended beneficiaries of the expanded research and clinical trial access. It would also create a new reporting obligation: NIH's Director would have to submit a report every two years to relevant House and Senate committees detailing the research conducted under the program and any resulting real-world evidence. The Senate passed the bill by voice vote on August 6, 2026, with an amendment. It now goes to the House of Representatives, which must pass it (in the same or a further-amended form) before it could be sent to the President.
- Has S. 1838 become law?
- Not yet. As of 6 Aug 2026, S. 1838 is passed senate (house next).
- Who sponsored S. 1838?
- S. 1838 was sponsored by Sen. John Hickenlooper [D-CO] (Democrat-CO), with 9 cosponsors.
- What's the latest action on S. 1838?
- Passed Senate with an amendment by Voice Vote. (6 Aug 2026).
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