DeOndra Dixon INCLUDE Project Act of 2025
The source supplies the latest action, but no lifecycle stage.
Latest action (21 Jul 2026): Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
What this bill does
H.R. 3491, the DeOndra Dixon INCLUDE Project Act of 2025, would amend the Public Health Service Act to formally authorize the National Institutes of Health to run a research program on Down syndrome, called the INCLUDE Project. The program would fund research, training, and investigation into how Down syndrome affects development and health across a person's lifespan, including studies on co-occurring conditions such as Alzheimer's disease and autoimmune disorders, efforts to include people with Down syndrome in clinical trials, and work aimed at improving quality of life for affected individuals and their families.
The bill directs the NIH Director to coordinate these activities across the agency's various institutes and centers, prioritize research that doesn't duplicate existing work, and consult with patient advocates and other stakeholders. It also requires NIH to report to relevant House and Senate committees every two years on the research being conducted, including which institutes are involved and any resulting findings usable for patient care. The measure primarily affects individuals with Down syndrome, their families, and researchers and clinicians working in this field by codifying and structuring federal support for this area of study.
The bill was introduced in May 2025 by Rep. Diana DeGette and passed the House by voice vote on July 20, 2026. It now goes to the Senate for consideration before it could be sent to the President.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
DeOndra Dixon INCLUDE Project Act of 2025
This bill provides statutory authority for a program of the National Institutes of Health (NIH) that carries out research and training relating to Down syndrome, including with respect to co-occurring conditions and improving the quality of life of affected individuals. The NIH must implement the program in consultation with relevant stakeholders and avoid duplicating existing NIH Down syndrome research.
Biennially, the NIH must submit to Congress a report cataloging the research, including results that may be used in medical care or clinical research.
Timeline
21 Jul 2026
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Common questions
- What does H.R. 3491 do?
- H.R. 3491, the DeOndra Dixon INCLUDE Project Act of 2025, would amend the Public Health Service Act to formally authorize the National Institutes of Health to run a research program on Down syndrome, called the INCLUDE Project. The program would fund research, training, and investigation into how Down syndrome affects development and health across a person's lifespan, including studies on co-occurring conditions such as Alzheimer's disease and autoimmune disorders, efforts to include people with Down syndrome in clinical trials, and work aimed at improving quality of life for affected individuals and their families. The bill directs the NIH Director to coordinate these activities across the agency's various institutes and centers, prioritize research that doesn't duplicate existing work, and consult with patient advocates and other stakeholders. It also requires NIH to report to relevant House and Senate committees every two years on the research being conducted, including which institutes are involved and any resulting findings usable for patient care. The measure primarily affects individuals with Down syndrome, their families, and researchers and clinicians working in this field by codifying and structuring federal support for this area of study. The bill was introduced in May 2025 by Rep. Diana DeGette and passed the House by voice vote on July 20, 2026. It now goes to the Senate for consideration before it could be sent to the President.
- Has H.R. 3491 become law?
- The source does not supply a confirmed lifecycle stage for H.R. 3491. Check the latest action and official source below.
- Who sponsored H.R. 3491?
- H.R. 3491 was sponsored by Rep. DeGette, Diana [D-CO-1] (D-CO), with 18 cosponsors.
- What's the latest action on H.R. 3491?
- Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (21 Jul 2026).
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