LuLu’s Law
The source supplies the latest action, but no lifecycle stage.
Latest action (13 Sep 2022): Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
What this bill does
S. 4827, known as “LuLu’s Law” or the National Sepsis Data Trust, Outcomes, and Innovation Act, would direct the Secretary of Health and Human Services to establish a standardized definition of sepsis and add it to the CDC’s list of nationally notifiable diseases. It would require HHS to develop a national strategy to reduce sepsis and its long-term health effects, with particular attention to groups identified as higher-risk, including children, pregnant and postpartum women, service members and veterans, elderly and disabled individuals, and residents of Tribal lands. The bill would also authorize grants for up to five states to build pilot “sepsis data trusts” collecting de-identified demographic, clinical, genetic, and payment data, and would direct HHS to create a national sepsis data trust linking state-level data under common privacy, security, and data-sharing rules.
The bill would primarily affect HHS, state health agencies, hospitals and other health care providers, and researchers who could apply for grants or access de-identified data through the trust. Patients would be affected indirectly, since their sepsis-related data—stripped of identifying information—could be collected and shared among approved entities for research and public health purposes. Grants to states would require a 25 percent non-federal funding match, and $5 million per year is authorized for fiscal years 2023 through 2028 for the state pilot programs.
The bill was introduced in the Senate on September 13, 2022, by Senator Bill Cassidy, with Senator Casey as a cosponsor, and referred to the Senate Committee on Health, Education, Labor, and Pensions. It was introduced in the 117th Congress and did not receive a vote before that Congress ended, meaning it did not become law and would need to be reintroduced to be considered further.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
National Sepsis Data Trust, Outcomes, and Innovation Act or LuLu's Law
This bill directs the Department of Health and Human Services (HHS) to address sepsis. (Sepsis is a life-threatening organ dysfunction caused by a dysregulated host response to infection.)
In particular, HHS must
• standardize the definition of sepsis;
• make sepsis a nationally notifiable condition;
• develop a national strategy for treating and eliminating the burden of sepsis; and
• establish a national sepsis data trust to improve the collection and sharing of data concerning sepsis cases, including through grants to support state-based data trusts.
Timeline
13 Sep 2022
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Common questions
- What does S. 4827 do?
- S. 4827, known as “LuLu’s Law” or the National Sepsis Data Trust, Outcomes, and Innovation Act, would direct the Secretary of Health and Human Services to establish a standardized definition of sepsis and add it to the CDC’s list of nationally notifiable diseases. It would require HHS to develop a national strategy to reduce sepsis and its long-term health effects, with particular attention to groups identified as higher-risk, including children, pregnant and postpartum women, service members and veterans, elderly and disabled individuals, and residents of Tribal lands. The bill would also authorize grants for up to five states to build pilot “sepsis data trusts” collecting de-identified demographic, clinical, genetic, and payment data, and would direct HHS to create a national sepsis data trust linking state-level data under common privacy, security, and data-sharing rules. The bill would primarily affect HHS, state health agencies, hospitals and other health care providers, and researchers who could apply for grants or access de-identified data through the trust. Patients would be affected indirectly, since their sepsis-related data—stripped of identifying information—could be collected and shared among approved entities for research and public health purposes. Grants to states would require a 25 percent non-federal funding match, and $5 million per year is authorized for fiscal years 2023 through 2028 for the state pilot programs. The bill was introduced in the Senate on September 13, 2022, by Senator Bill Cassidy, with Senator Casey as a cosponsor, and referred to the Senate Committee on Health, Education, Labor, and Pensions. It was introduced in the 117th Congress and did not receive a vote before that Congress ended, meaning it did not become law and would need to be reintroduced to be considered further.
- Has S. 4827 become law?
- The source does not supply a confirmed lifecycle stage for S. 4827. Check the latest action and official source below.
- Who sponsored S. 4827?
- S. 4827 was sponsored by Sen. Cassidy, Bill [R-LA] (R-LA), with 1 cosponsor.
- What's the latest action on S. 4827?
- Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (13 Sep 2022).
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