My Body, My Data Act of 2022
The source supplies the latest action, but no lifecycle stage.
Latest action (23 Jun 2022): Sponsor introductory remarks on measure. (CR H5831)
What this bill does
The My Body, My Data Act of 2022 (H.R. 8111) would restrict how companies and other covered entities collect, retain, use, and disclose "personal reproductive or sexual health information," a broadly defined category covering things like pregnancy, contraception use, menstrual and fertility data, and related inferred data. Entities could only handle such information with a person's explicit, informed consent or when strictly necessary to provide a requested product or service. Companies would have to limit employee access to this data, let individuals view, learn the source of, and delete their information, and maintain a public privacy policy disclosing their data practices and any third parties involved.
The bill applies to businesses generally subject to Federal Trade Commission jurisdiction, common carriers, and nonprofit organizations, but exempts entities already governed by HIPAA medical-privacy rules or certain federal substance-use-record protections, and it includes an exception for newsworthy journalism. It would affect any organization—apps, data brokers, retailers, tech platforms—that collects reproductive or sexual health data, as well as consumers who use their services. Violations could be enforced by the FTC and through individual lawsuits, with statutory damages available and pre-dispute arbitration clauses barred.
The bill was introduced June 16, 2022, in the 117th Congress and referred to the House Energy and Commerce Committee. It did not receive a vote and did not become law before that Congress ended.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
My Body, My Data Act of 2022
This bill establishes protections, subject to certain limits, for personal reproductive or sexual health information. This includes information relating to past, present, or future surgeries or procedures, such as the termination of a pregnancy.
Specifically, commercial entities, including individuals, nonprofits, and common carriers, may not collect, retain, use, or disclose personal reproductive or sexual health information except (1) with the express written consent of the individual to whom such information relates, or (2) as is strictly necessary to provide a requested product or service.
Commercial entities also must provide individuals with access to, and a reasonable mechanism to delete, any of their reproductive or sexual health information upon request. Further, commercial entities must maintain and publish a privacy policy describing their practices with respect to such information.
The bill's provisions do not apply to entities that are subject to certain existing health-related privacy regulations, such as the privacy regulations issued under the Health Insurance Portability and Accountability Act of 1996. Additionally, the provisions do not apply to the disclosure of personal reproductive or sexual health information for the publication of newsworthy information of legitimate public concern.
The bill provides for enforcement by the Federal Trade Commission and by private civil actions.
Timeline
23 Jun 2022
Sponsor introductory remarks on measure. (CR H5831)
Common questions
- What does H.R. 8111 do?
- The My Body, My Data Act of 2022 (H.R. 8111) would restrict how companies and other covered entities collect, retain, use, and disclose "personal reproductive or sexual health information," a broadly defined category covering things like pregnancy, contraception use, menstrual and fertility data, and related inferred data. Entities could only handle such information with a person's explicit, informed consent or when strictly necessary to provide a requested product or service. Companies would have to limit employee access to this data, let individuals view, learn the source of, and delete their information, and maintain a public privacy policy disclosing their data practices and any third parties involved. The bill applies to businesses generally subject to Federal Trade Commission jurisdiction, common carriers, and nonprofit organizations, but exempts entities already governed by HIPAA medical-privacy rules or certain federal substance-use-record protections, and it includes an exception for newsworthy journalism. It would affect any organization—apps, data brokers, retailers, tech platforms—that collects reproductive or sexual health data, as well as consumers who use their services. Violations could be enforced by the FTC and through individual lawsuits, with statutory damages available and pre-dispute arbitration clauses barred. The bill was introduced June 16, 2022, in the 117th Congress and referred to the House Energy and Commerce Committee. It did not receive a vote and did not become law before that Congress ended.
- Has H.R. 8111 become law?
- The source does not supply a confirmed lifecycle stage for H.R. 8111. Check the latest action and official source below.
- Who sponsored H.R. 8111?
- H.R. 8111 was sponsored by Rep. Jacobs, Sara [D-CA-53] (D-CA), with 117 cosponsors.
- What's the latest action on H.R. 8111?
- Sponsor introductory remarks on measure. (CR H5831) (23 Jun 2022).
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