Advancing Research for Neurological Diseases Act of 2016
Latest action (9 Feb 2016): Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
What this bill does
S. 849, the Advancing Research for Neurological Diseases Act of 2016, would amend the Public Health Service Act to authorize the Secretary of Health and Human Services to improve collection of epidemiological and surveillance data on neurological diseases, potentially through a registry. The Secretary would initially focus on up to five neurological diseases identified as most prevalent or posing a significant public health burden, building on and coordinating with existing federal data systems where possible. Collected information could include demographics, risk factors, and diagnosis or disease-progression markers, and the Secretary could award grants or contracts to public or nonprofit entities to carry out this work.
The bill would primarily affect the Department of Health and Human Services, which would gain new authority (though not a mandate) to establish this data-collection effort, as well as researchers, clinicians, and patient advocacy organizations focused on neurological diseases such as multiple sclerosis and Parkinson's disease, who could be consulted or use the resulting data. Data would be shared with other federal agencies and made available for biomedical research consistent with privacy laws. The Secretary would be required to report to Congress on the program's implementation.
The bill was introduced in March 2015 in the Senate and referred to the Committee on Health, Education, Labor, and Pensions. On February 9, 2016, the committee ordered it reported favorably with an amendment in the nature of a substitute, which replaced the original text with the version described above; it was formally reported on April 4, 2016. The bill did not receive a floor vote in this session of Congress.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
Advancing Research for Neurological Diseases Act of 2016
(Sec. 2) This bill amends the Public Health Service Act to authorize the Department of Health and Human Services (HHS) to improve the collection of epidemiological and surveillance data on neurological diseases and conditions. HHS may provide support to public or nonprofit entities for such purpose. Collected data must be made available for biomedical research.
Timeline
9 Feb 2016
Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
Common questions
- What does S. 849 do?
- S. 849, the Advancing Research for Neurological Diseases Act of 2016, would amend the Public Health Service Act to authorize the Secretary of Health and Human Services to improve collection of epidemiological and surveillance data on neurological diseases, potentially through a registry. The Secretary would initially focus on up to five neurological diseases identified as most prevalent or posing a significant public health burden, building on and coordinating with existing federal data systems where possible. Collected information could include demographics, risk factors, and diagnosis or disease-progression markers, and the Secretary could award grants or contracts to public or nonprofit entities to carry out this work. The bill would primarily affect the Department of Health and Human Services, which would gain new authority (though not a mandate) to establish this data-collection effort, as well as researchers, clinicians, and patient advocacy organizations focused on neurological diseases such as multiple sclerosis and Parkinson's disease, who could be consulted or use the resulting data. Data would be shared with other federal agencies and made available for biomedical research consistent with privacy laws. The Secretary would be required to report to Congress on the program's implementation. The bill was introduced in March 2015 in the Senate and referred to the Committee on Health, Education, Labor, and Pensions. On February 9, 2016, the committee ordered it reported favorably with an amendment in the nature of a substitute, which replaced the original text with the version described above; it was formally reported on April 4, 2016. The bill did not receive a floor vote in this session of Congress.
- Has S. 849 become law?
- Not yet. As of 9 Feb 2016, S. 849 is ordered reported.
- Who sponsored S. 849?
- S. 849 was sponsored by Sen. John “Johnny” Isakson [R-GA, 2005-2019] (Republican-GA), with 27 cosponsors.
- What's the latest action on S. 849?
- Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably. (9 Feb 2016).
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