Genetic Research Privacy Protection Act
Latest action (5 Apr 2016): Introduced
What this bill does
Generate a neutral, plain-English explanation of what this bill does, who it affects and what happens next — grounded in the official text.
Official summary
Genetic Research Privacy Protection Act
This bill amends the Public Health Service Act to revise provisions regarding disclosure by researchers of the identifiable, sensitive information of research subjects. The Department of Health and Human Services (HHS) must prohibit researchers from disclosing such information from federally funded research to persons not connected to the research. Researchers may apply to have other research covered by this prohibition.
Disclosures of such information are permitted if required by law, necessary for the medical treatment of the research subject, made with the consent of the subject, or made for the purposes of other research that is in compliance with regulations regarding protection of subjects.
HHS may exempt identifiable information collected for biomedical research from disclosure under the Freedom of Information Act.
Common questions
- What does S. 2744 do?
- Genetic Research Privacy Protection Act This bill amends the Public Health Service Act to revise provisions regarding disclosure by researchers of the identifiable, sensitive information of research subjects. The Department of Health and Human Services (HHS) must prohibit researchers from disclosing such information from federally funded research to persons not connected to the research. Researchers may apply to have other research covered by this prohibition. Disclosures of such information are permitted if required by law, necessary for the medical treatment of the research subject, made with the consent of the subject, or made for the purposes of other research that is in compliance with regulations regarding protection of subjects. HHS may exempt identifiable information collected for biomedical research from disclosure under the Freedom of Information Act.
- Has S. 2744 become law?
- Not yet. As of 5 Apr 2016, S. 2744 is introduced.
- Who sponsored S. 2744?
- S. 2744 was sponsored by Sen. Elizabeth Warren [D-MA] (Democrat-MA), with 1 cosponsor.
- What's the latest action on S. 2744?
- Introduced (5 Apr 2016).
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