Mary Jo Lawyer Spano Mesothelioma Patient Registry Act of 2015
The source supplies the latest action, but no lifecycle stage.
Latest action (31 Jul 2015): Referred to the Subcommittee on Health.
What this bill does
H.R. 3284, the Mary Jo Lawyer Spano Mesothelioma Patient Registry Act of 2015, would amend the Public Health Service Act to direct the Secretary of Health and Human Services, acting through the Agency for Toxic Substances and Disease Registry, to create a national patient registry for mesothelioma. The registry would track the disease's incidence and prevalence, collect data on treatment outcomes and patient longevity, examine environmental, occupational, and demographic risk factors, and make non-identifiable information publicly available to support research. The Secretary would be required to consult outside experts, coordinate with other federal health agencies, and apply HIPAA-level privacy protections, plus submit an initial report to Congress within 18 months and a follow-up report within four years.
The bill would primarily affect patients diagnosed with mesothelioma, researchers, clinicians, public health agencies, and federal health-related departments (such as NIH, FDA, CMS, VA, and DoD), by creating a centralized data source intended to improve understanding, research, and treatment of the disease.
The bill was introduced on July 29, 2015, by Rep. John Katko with several cosponsors and referred to the House Committee on Energy and Commerce. It did not receive a vote and did not advance further in the 114th Congress.
Plain-English summary generated by Bill100 AI from the official record. Always verify against the source below.
Official summary
Mary Jo Lawyer Spano Mesothelioma Patient Registry Act of 2015
This bill amends the Public Health Service Act to direct the Agency for Toxic Substances and Disease Registry to develop a patient registry to collect data on mesothelioma.
The Agency shall use the registry to:
• enhance and expand infrastructure and activities for tracking the epidemiology of mesothelioma patients;
• collect, consolidate, and report on health information on mesothelioma patients;
• describe the incidence and prevalence of mesothelioma in the United States;
• facilitate research on mesothelioma;
• examine factors that may be associated with mesothelioma;
Timeline
31 Jul 2015
Referred to the Subcommittee on Health.
Common questions
- What does H.R. 3284 do?
- H.R. 3284, the Mary Jo Lawyer Spano Mesothelioma Patient Registry Act of 2015, would amend the Public Health Service Act to direct the Secretary of Health and Human Services, acting through the Agency for Toxic Substances and Disease Registry, to create a national patient registry for mesothelioma. The registry would track the disease's incidence and prevalence, collect data on treatment outcomes and patient longevity, examine environmental, occupational, and demographic risk factors, and make non-identifiable information publicly available to support research. The Secretary would be required to consult outside experts, coordinate with other federal health agencies, and apply HIPAA-level privacy protections, plus submit an initial report to Congress within 18 months and a follow-up report within four years. The bill would primarily affect patients diagnosed with mesothelioma, researchers, clinicians, public health agencies, and federal health-related departments (such as NIH, FDA, CMS, VA, and DoD), by creating a centralized data source intended to improve understanding, research, and treatment of the disease. The bill was introduced on July 29, 2015, by Rep. John Katko with several cosponsors and referred to the House Committee on Energy and Commerce. It did not receive a vote and did not advance further in the 114th Congress.
- Has H.R. 3284 become law?
- The source does not supply a confirmed lifecycle stage for H.R. 3284. Check the latest action and official source below.
- Who sponsored H.R. 3284?
- H.R. 3284 was sponsored by Rep. Katko, John [R-NY-24] (R-NY), with 24 cosponsors.
- What's the latest action on H.R. 3284?
- Referred to the Subcommittee on Health. (31 Jul 2015).
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